Jacob's Cure News Coverage | A Fight Against Canavan Disease

Biz Bash Jacob's Cure Expands Fundraising with First Full-Scale Gala Benefit

Jacob's Cure spent its first 10 years hosting modestly sized benefits like family bowling tournaments, casino nights, and documentary screenings. But last Thursday at Pier Sixty, 800 guests raised more than $1 million at the foundation's first gala benefit.

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New York Post
Page Six
June 6, 2010

Eli Manning, Donny Deutsch and "America's Next Top Model" winner Jaslene Gonzalez helping raise $1 million for Jacob's Cure at Pier 60.

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Jacob's Cure Taxi TV Ad
The Fight Against Canavan Disease
Airs February 28, 2010

Jacob's Cure takes NYC! See our 30-second Taxi TV ad, which showed in 5,500 taxicabs throughout NYC in December of 2009. It aired again on February 28, 2010, National Rare Disease Day.

View the Taxi TV Ad :)

Clever Parents
Episode #34 Jacob's Cure for Canavan Disease
& Is Your Baby a Conservation Baby?

Meet Jordana Holovach, mother of Jacob and founder of Jacob's Cure, an organization dedicated to finding a cure for Canavan Disease, a devasting genetic brain disorder.

Watch the Episode :)
Read Episode Article :)

New York Times
Taking a Chance on a Second Child
By Michael Winerip, May 2008

People kept saying the best thing she could do would be to have a second child as soon as possible, but for many years, Jordana Holovach could not bear the thought of it. Her first, Jacob, had been born severely handicapped in 1996

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View New York Times Visual Feature :)

Johnny Jet's Travel Blog
Website of the Day
September 14, 2008

As my brother continues to undergo cancer treatment, we are supporting worthy cancer foundations. THis weel we're supporting New York based-Jacob's Cure, a non-profit foundation dedicated to raising money to support and promote cutting-edge research to develop a cure...

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As Daylight Breaks, A Documentary
By Stefenie Sasson
October 27, 2007

A documentary that exposes Canavan disease, a fatal genetic brain illness that affects children at birth. Special screening was held at Arclight Cinemas, Los Angeles, California.

Watch the Access Hollywood Clip :)
Learn More about the Movie :)
View Screening Event Photos :)
Host a Screening Party :)
Sen. John McCain Letter of Support :)

InStyle Magazine
Jacob's Cure Smiley Face Bag by Baby Dish
Mother's Love June 6, 2007

"I think the best way to support a charity is to go to an event like this and learn about it and support it," said Lake Bell, who went straight to the source by chatting with Jacob's Cure founder Jordana Holovach. "I've heard wonderful things about it, and Jordana's story is both heart wrenching and so inspiring."

Event Photos :)
View Segment on Access Hollywood :)

Jacob's Cure Smile Charm by Helen Ficalora
Launch Party
February 1, 2007

Luck Magazine's launch of the Jacob's Cure Smile Charm by Helen Ficalora. 25% of the proceeds and 10% of all sales during the event will benefit Jacob's Cure.

Purchase a Jacob's Cure Smile Charm :)
LA Confidential Magazine :)
Fox 5 News Coverage :)
NBC News Coverage :)
Daily News Newsclip :)

ABC's the VIEW
Jacob Sontag and Mother Jordana Holovach
Interviewed by Rosie O'Donnell, April 2007

View Segment:)

The Journal News, Lower Hudson Valley
The Strength of a Mother's Love
Photographs by Seth Harrison, April 2006

Voice over by Jordana Holovach. Photographs by Seth Harrison.

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The Jewish Week
Caring For Jacob: A Mother's Day Story
By Jordana Holovach, May 15, 2006

Mothers will be showered with adoration this weekend, from breakfast in bed to dinners they did not cook. Flowers will be plentiful and children will do something extra special to show their moms how much they are loved and appreciated

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The Journal News
Harrison Child Fighting Rare Brain Disease
By Liz Salder, April 24, 2006

Jordana Holovach stood at her kitchen counter, grinding up medicine with a mortar and pestle. In the next room, her 10-year-old son, Jacob Sontag, sat in a wheelchair...

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New York Times
Grief and Rage, Distilled Into Generosity
By Carin Rubenstein, March 5, 2006

When Gina Arena of Purdys eulogized her 6-year-old son, Jimmy, last September, she told his nearly 1,000 assembled mourners that "the ripple effect of his life will be felt forever...

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The News Virginian, Associated Press
A Mom's Quest to See Her Son Grow Up
By Colleen Long, December 14, 2005

Jacob Sontag is 9 years old. The blond, blue-eyed boy wears glasses and has a wide, happy grin. His mom and his teachers say he's one of the most popular students in second grade.

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The News Virginian, Associated Press
Bejeweled for a Cure
By Colleen Long, December 14, 2005

A small gold charm hangs from Jordana Holovach's neck. It's about the size of a thumbprint and says, "smile."

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Philadelphia Inquirer
Sending Genes to Save a Child
Pa. parents gamble on an unproven therapy to give their infant daughter a normal life.
By Rory Sweeney, September 17, 2005

On Wednesday, little Ariel Coover lay with her chin tucked to her chest in a bright, white operating room at Cooper University Hospital in Camden..

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Trader Monthly
My Charity: Jacob's Cure
March 2005

When Steven Starker, founder and CCEO of New York based Bass Trading, first about an ailing young by names Jacob Sontag, he swiftly decided that his company - a third market trading firm that serves institutional investors - would help out...

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New York Daily News
So Near, So Far; A child and his rare disease put a human face on the stem-cell research controversy
By Juliam Kesner, April 13, 2005

Shortly after her son Jacob Sontag was born in 1996, Jordana Holovach began to feel that something wasn't quite right...

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The Star Ledger
Opinion: Codey's stem cell plan is an investment in hope
By Jordana Holovach, January 14, 2005

Acting Gov. Richard Codey used his State of the State address to call for New Jersey to become one of the true pioneers in the advancement of stem cell research..

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New York Post
Ma Strives to Cure Fatal Kid Disease
By Dylan Foley, September 14, 2004

Jordana Holovach cried tears of anguish after doctors told her that her 6-month-old son, Jacob, wouldn't see his 10th birthday. He was suffering from an incurable and fatal brain disorder called Canavan disease.

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Bowlathon
Page Six.com

Celebrity Show Support at Jacob's Cure Benefit Bowl-a-thon

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>New York Times Magazine
Keeping Jacob Alive
By Michael Winerip, December 2004

Jordana and Richard Sontag were speeding toward Yale University, angry, desperate, ready to unleash, their secret weapon, which they had carefully loaded into the back of their Grand Cherokee...

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The Journal News
Boy Battles Rare Disease
By Rich Logis, December 2003

Jacob Sontag is considered the "poster child" for disease. Jacob has Canavan's disease, a neurological disorder in the brain. The 7-year-old uses a wheelchair and receives daily therapy...

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The Rivertowns Enterprise
Jacob's Story: Dobbs girls search for cure
By Ken Kostik, February 22, 2002

To Lexi Alicea, it was a labor of love."I love him as a brother," said Lexi, a sophomore starting forward on the Dobbs Ferry Lady Eagle basketball team...

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New York Post
Snaps
February 17, 2002

Marcus Schenkenberg was on the ball at the Jacob's Cure Basketball Tournament benefiting Canavan Disease Research.

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Congressional Testimony
Given on March 15, 2001
February 17, 2002

My name is Jordana Sontag and I am the mother of Jacob, born in February of 1996 and then six months later diagnosed with Canavan disease, a fatal neurological genetic disorder that affects the white matter of the brain...

Read Full Testimony :)
View Video :) (Requires Real Player)

New York Times
Fighting for Jacob
By Michael Winerip December 6, 1998

Jordana and Richard Sontag were speeding toward Yale University, angry, desperate, ready to unleash their secret weapon, which they had carefully loaded into the back of their Grand Cherokee. For a year, they had done everything in their power to save their dying baby boy, Jacob.

Read 2008 Article :)

CCQ Country Club Quarterly
The Search for Jacob's Cure
By Jessica Jones

In a crusade against her son's crippling disease, one local woman has rallied the community and raised millions...

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Gotham Magazine
Search for Tomorrow
By Judith Giuliani

Meet the mom who's determined to beat the odds and find a cure for her son's neurological disorder...

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Bella Online, the voice of women
Jacob's Cure
By Jackie O'Neal

Jordana Holovach, founder of Jacob's Cure, a non-profit organization dedicated to finding a cure for Canavan Disease.

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